Happy Birthday to my Dear Husband!

Build a Better Boat Tom and Diane Leone in Paris

Hi everyone. I had not recorded an update a a few weeks so I thought today was a good day to do it. It’s Tom’s birthday! You can imagine what we are happy for today. Last year on Tom’s birthday, thanks to a friend treating us, we were in Paris! We are so glad for those memories and for the great new friends we met.

This is a short video update. Hope everyone has a great week!

https://youtu.be/OsOXo6XIlmw

August was as Bad as July

Diane Leone Build a better boat
Tom and his dad, Al and his mom, Alice.

After the surgery and diagnosis in July, how could August be as bad as July? Well, the same week of Tom’s diagnosis, I lost my largest monthly client. He called that week and canceled that week, no notice so a chunk of income was gone. We had no idea what costs and expenses were ahead of us. It just kept getting worse that month.

I had to focus on Tom and on research. And that’s what I did. It’s a poignant moment in life when you realize you need help and then you have to ask for it. My family helped, my friends, and associates.

It wasn’t an easy decision because we felt humiliated and I think you feel like people will judge you and I’m certain some people did that and all but one kept it to themselves. I had to be okay with that. I felt the love from the people who helped us financially to the people that prayed for us and sent positive vibes our way. The people who called, texted, stopped by to ask how we were doing, how Tom was doing. I am especially grateful for those brave souls that were genuinely interested in what Tom was doing and why.

Often we are told that Tom should have his bladder removed. It was never an option and everyone means well. They want him to be well. But that was not Tom’s answer. The organic, holistic treatment, that’s Tom and it’s working. But in August, we didn’t know. We were just starting down that path.

As if that was not enough stress in someone’s life, Tom’s dad, who had been sick for so long, passed away on August 28th. We received a call that night and drive almost 2 hours to be there with his mom. As Tom and I spent a moment with his father before they came to the house to take him away, Tom broke down sobbing and I couldn’t hold him tight enough. He just lost his father, he just found out he has cancer, and he’s trying to deal with all that comes with both of these life issues. It was too much.

When I look back through my entries in the journal in August, it was a rough month. But we are here today, with wonderful test results and Tom feels great. Grateful.

Great News!

Diane Leone with Tom in Wholefoods
Tom at Wholefoods with Me for the First Time.

Great News is always welcome! Friday was such a great day. Each time Tom has a test of any kind, I worry (and I know he does too) as we wait for the results. Considering we had such great news from the last CT scan, we were anxious to get the blood test results.

The Doctor ran a CBC, checked inflammation markers, and ran one of the 4 tests I inquired about that I found at ChrisBeatCancer.com from Chris Wark. She agreed that the CEA test would be beneficial. It tests for the level of a specific protein in the blood that can indicate the presence of cancer.

The news was great! The bloodwork is excellent and supports the CT scan results. We are so happy. I’ve decided that in the future, my goal is to expect the test results to be great and not worry. We will continue on with the treatments, except the oxygen, with Tom developing Tinnitus, we felt it was best to stop the hyperbaric chamber for a while. The picture above is of Tom on his first trip with me to Wholefoods. He really enjoyed the experience!

We are grateful.

The Day the World Stopped Turning…

Tom’s birthday in Paris, February 2018

July 31, 2018 – We get the news…Tom has Bladder Cancer.

The Dr. who had a dull bedside manner at best, called while we were making dinner. I could see it on Tom’s face, I knew it was cancer. Bladder Cancer stage T1 high level. It had spread from the bladder lining to the thin tissue between the lining and the muscle-the exact place the cancer spreads to first is the muscle. The Dr. started on the phone talking about BCG treatment, chemo, radiation, and possibly removing the bladder. Unbelievable thing to do to someone whom you just told they have cancer.

We cried so hard and held each other so tight. This couldn’t be happening, it didn’t feel real. But it was real and we were not fighting for Tom’s life.

I made a note in my journal, “Have to share info with Tom to get him to understand other treatment options…but not everything like, how bad the survival rate could be with this cancer. I hate the word cancer.

We head to the Dr.’s office to have the catheter removed but the Dr. isn’t there so we have to wait. There was a flood of emotions from fear, anger, sadness, and just being overwhelmed while we waited for the next appointment and we researched like crazy the treatment options.

As I read my journal entries, there are moments of fear, sadness, being overwhelmed, and hope. Days of crying and days of doing a ton of research to find what we needed. After 5 Urologists, none of whom liked us very much, we are not deterred from our quest to push cancer back with the treatment protocol Tom has decided to use.