Put Your Oxygen Mask on First…

Todrickhall Virgin Flight Safety Video Image and Build A Better Boat

We all know this. It sounds so logical and simple yet, how do you do that when every ounce of energy you have is being put into helping your husband treat his cancer?

Dear friends, family members, and people that I didn’t really know but cared, all told me I needed to take care of myself too, put my oxygen mask on first because if I got sick, I couldn’t help Tom at all.

I knew this was a truth yet I simply couldn’t. There were no minutes left in a day and no money for anything other than what we needed, what Tom needed to get rid of this horrid disease.

I believe that the cornerstone of Tom’s treatment protocol really helped me do what I needed to do this past year and kept me healthy-an all-organic diet.

Now, over a year later and two months of “all clear” on his tests, we are trying to settle into a “new normal” and get some things back on track.

My body has told me in no uncertain terms that I need to take care of it. My adrenals are exhausted and depleted from the long and intense stress.

“According to the theory from WebMD, if you have long-term stress (like the death of a family member or a serious illness), your adrenal glands burn out from prolonged production of cortisol. So adrenal fatigue sets in.”

It can keep you from losing weight and overall just make you feel exhausted and bad all of the time. There are other symptoms that have told me it is time to focus a bit on healing myself.

So, I started with a massage with Cranio-sacral treatment and my first IV Vitamin C therapy. I’ve started on some nutritional supplements to help my adrenals recover and I took a precious walk on the beach today.

The ocean calms my soul, it’s like meditation when I walk on the beach. It also is something called “grounding”. I walk barefoot on the beach and it’s healthy to walk barefoot in nature to connect and ground yourself with it.

So, thank you to all of you who told me and worried about me and to those who are in similar situations, I hope you are able to put your oxygen mask on first to take care of yourself and the one you are caring for.

The image on the post is from my favorite airline safety video-Virgin airlines. https://youtu.be/z1A5BtqsaPM

Where in the World Have We Been?

Build A Better Boat and Diane P Leone

It’s been a while since I’ve posted. It was a bit of a surprise to us what we would go through emotionally after getting the news that Tom is cancer-free. Yes, after the shock and it sank in that it was real, we were so happy, relieved.

Living a real, authentic life together is important and we hope all of our family and friends understand and if the don’t, it’s okay.

What we didn’t expect? How do we decide when/how we can modify what we are doing? When we tell people Tom is cancer-free, they don’t say it but we think they are thinking, “that’s great but it can (or will) come back.” We discussed it and our response is that if Tom becomes symptomatic again, we know what to do and we are confident in that.

We are also continuing to eat whole, organic foods and we decided we won’t stop that. Regarding treatments and nutrient/supplements, we are taking time to evaluate them and after more testing over several months, we’ll decide, with the help of Tom’s Doctor, what to cut back on.

We both actually have felt a grieving process of losing our life before cancer. The truth is, life has changed forever after the cancer diagnosis. Then we spent a year completely focused on survival mode and getting Tom well. Now, what is our normal life? It feels a bit robotic and exhausting.

We want more peace in our life. We want to enjoy life again and appreciate it so much more. We eventually want to be able to travel a little bit.

Physical things are not important to us. Something interesting, however, is we have lived in our home 22 years and we tend to pick nice, quality furnishings and we’ve owned most of our things for many years. It feels like a memory of life before so we hope in the future to replace some pieces, and re-paint.

I am focusing on re-starting my business and determining when and how I will transition or add on helping people with holistic wellness. It’s become my passion.

Tom is Cancer Free!!!

Tom & Huxley and Build A Better Boat

Tom’s MRI, the last CT scan, and all blood tests show “All Clear”. Can you believe it? It took us a few days to process it but a feeling of relief and gratefulness was immediate when we received the MRI results.

It’s been a long year, with lots of changes and a lot of learning in a short amount of time. Basically, life has changed forever.

We will be closing the Go Fund Me page.

Not sure we could have gotten through most of this without the love, thoughts, prayers, and help from our friends and family and we want to thank you all so much for it. It wasn’t easy and it was definitely humbling to ask for the help we needed and we want to say “thank you” for all that all of you have done.


I think the last week has been a slow, thoughtful time of going over the past year and concluding that “all is clear”. We are choosing to live in the present as best we can. Not looking back, and trying not to worry about the future as we are not there, we are here now, in the present.

We will continue to eat 100% organic and determine with Tom’s Doctor what supplements he needs to continue taking and we will always live as healthy as possible.

We will continue to post blogs and updates on Tom’s page:www.BuildABetterBoat.life and we welcome you to follow it if you are interested in our journey.

We want to share our experience and what we have learned in the hope that everyone who knows us will feel they have options in their healthcare and we hope you all choose to live the healthiest life possible.

We are still here, rebuilding and moving forward and we appreciate you all more than words can show. We hope you’ll follow our blog and this Facebook page and Tom just wanted to say “THANK YOU” and….

He is ALL CLEAR, healthy, happy, forever grateful, and will continue “building a better boat” always. 🙏 ⛵️

Happy Birthday to my Dear Husband!

Build a Better Boat Tom and Diane Leone in Paris

Hi everyone. I had not recorded an update a a few weeks so I thought today was a good day to do it. It’s Tom’s birthday! You can imagine what we are happy for today. Last year on Tom’s birthday, thanks to a friend treating us, we were in Paris! We are so glad for those memories and for the great new friends we met.

This is a short video update. Hope everyone has a great week!

https://youtu.be/OsOXo6XIlmw

August was as Bad as July

Diane Leone Build a better boat
Tom and his dad, Al and his mom, Alice.

After the surgery and diagnosis in July, how could August be as bad as July? Well, the same week of Tom’s diagnosis, I lost my largest monthly client. He called that week and canceled that week, no notice so a chunk of income was gone. We had no idea what costs and expenses were ahead of us. It just kept getting worse that month.

I had to focus on Tom and on research. And that’s what I did. It’s a poignant moment in life when you realize you need help and then you have to ask for it. My family helped, my friends, and associates.

It wasn’t an easy decision because we felt humiliated and I think you feel like people will judge you and I’m certain some people did that and all but one kept it to themselves. I had to be okay with that. I felt the love from the people who helped us financially to the people that prayed for us and sent positive vibes our way. The people who called, texted, stopped by to ask how we were doing, how Tom was doing. I am especially grateful for those brave souls that were genuinely interested in what Tom was doing and why.

Often we are told that Tom should have his bladder removed. It was never an option and everyone means well. They want him to be well. But that was not Tom’s answer. The organic, holistic treatment, that’s Tom and it’s working. But in August, we didn’t know. We were just starting down that path.

As if that was not enough stress in someone’s life, Tom’s dad, who had been sick for so long, passed away on August 28th. We received a call that night and drive almost 2 hours to be there with his mom. As Tom and I spent a moment with his father before they came to the house to take him away, Tom broke down sobbing and I couldn’t hold him tight enough. He just lost his father, he just found out he has cancer, and he’s trying to deal with all that comes with both of these life issues. It was too much.

When I look back through my entries in the journal in August, it was a rough month. But we are here today, with wonderful test results and Tom feels great. Grateful.

Great News!

Diane Leone with Tom in Wholefoods
Tom at Wholefoods with Me for the First Time.

Great News is always welcome! Friday was such a great day. Each time Tom has a test of any kind, I worry (and I know he does too) as we wait for the results. Considering we had such great news from the last CT scan, we were anxious to get the blood test results.

The Doctor ran a CBC, checked inflammation markers, and ran one of the 4 tests I inquired about that I found at ChrisBeatCancer.com from Chris Wark. She agreed that the CEA test would be beneficial. It tests for the level of a specific protein in the blood that can indicate the presence of cancer.

The news was great! The bloodwork is excellent and supports the CT scan results. We are so happy. I’ve decided that in the future, my goal is to expect the test results to be great and not worry. We will continue on with the treatments, except the oxygen, with Tom developing Tinnitus, we felt it was best to stop the hyperbaric chamber for a while. The picture above is of Tom on his first trip with me to Wholefoods. He really enjoyed the experience!

We are grateful.

The Day the World Stopped Turning…

Tom’s birthday in Paris, February 2018

July 31, 2018 – We get the news…Tom has Bladder Cancer.

The Dr. who had a dull bedside manner at best, called while we were making dinner. I could see it on Tom’s face, I knew it was cancer. Bladder Cancer stage T1 high level. It had spread from the bladder lining to the thin tissue between the lining and the muscle-the exact place the cancer spreads to first is the muscle. The Dr. started on the phone talking about BCG treatment, chemo, radiation, and possibly removing the bladder. Unbelievable thing to do to someone whom you just told they have cancer.

We cried so hard and held each other so tight. This couldn’t be happening, it didn’t feel real. But it was real and we were not fighting for Tom’s life.

I made a note in my journal, “Have to share info with Tom to get him to understand other treatment options…but not everything like, how bad the survival rate could be with this cancer. I hate the word cancer.

We head to the Dr.’s office to have the catheter removed but the Dr. isn’t there so we have to wait. There was a flood of emotions from fear, anger, sadness, and just being overwhelmed while we waited for the next appointment and we researched like crazy the treatment options.

As I read my journal entries, there are moments of fear, sadness, being overwhelmed, and hope. Days of crying and days of doing a ton of research to find what we needed. After 5 Urologists, none of whom liked us very much, we are not deterred from our quest to push cancer back with the treatment protocol Tom has decided to use.